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Category: crohn's

05/07/09 10:26 - 53ºF - ID#48621

Crohn's And My Life

I was contacted by the Jeanenne of the Crohn's & Colitis Foundation of Buffalo because my journal came up number one for "crohn's buffalo" and they are having some walk on May 20th. I will post more about it when they send me the info.

In light of the ranking, I figured I should post a positive crohn's post for any other crohnies out there look for positive inspiration.

The truth is I don't think about it much anymore because I don't have any symptoms anymore since I had my appendix out last year in April (e:paul,44050). You can tell because I haven't posted about it since.

During the last year I have also been taking Lialda a form of mesalamine. It has no side major side effects for me so far and is a million times more manageable than when I was on asacol. With the asacol I used to take 3 pills, three times a day. I would worry all the time about remembering the pills and thought I needed to take them with food so it messed up my whole schedule. I think the worrying made it all worse.

With the Lialda I take 3 pills once in the morning with water before breakfast. Nothing to worry about all day.

The great news is that either I am just doing better minus the appendix or the Lialda is a freakin' miracle. My life is totally different to when I think about my life during that flare up I had in January of 2008. I really thought I was gonna die.

During the year I also wen tto the gym a lot, put on like 20 pounds and eat really well.

The only downside is the Lialda costs $900/month. Luckily, I have really good health insurance that pays for all but $15 of it. I mean it seems worth so much if it is in fact what is making me better but at the same time that seems like such an extreme about of money and cost prohibitive for so many people.

I keep wondering if I can go off the medicine since it has been a year since I had symptoms. I should probably go and see the doctor but the last time I saw him he told me I would need to take it forever and as long as I have health insurance, that is okay with me.
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Permalink: Crohn_s_And_My_Life.html
Words: 401
Location: Buffalo, NY


Category: life

05/05/09 04:28 - 68ºF - ID#48595

Its almost summer

But my life has been a series a computer programming tasks, followed by home repair tasks - back to back, 18/7. I am ready for the part of summer that has things like food festivals and hiking.
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Permalink: Its_almost_summer.html
Words: 36
Location: Buffalo, NY


Category: housing

05/04/09 09:35 - 51ºF - ID#48588

How am I back in the same situation?

The last tenant to go was supposed ot be out May 1st. If you remember from my previous entry about it, I gave her $100 to have her stuff out on the 1st. She already owes use so many hundreds of dollars, I figured what was one more, if she was just gone and we could begin the rental process again with different people.

Well, we went to go clean it on Sunday and all her stuff was still there. So I call her today to tell her to get it out by friday or its going to salvation army and she flips out. We get her rent from the city and I told her I was holding it until the stuff was out because she is renting the space until it is vacated.

So she has her grandmother call me, all upset that the poor girl has no money and why can't I cut her a break. Well, because she has screwed me out of $1000+, she left both apartments nasty, and she removed the appliances from upstairs and brought them downstairs - which means I have to bring them back up and they are way heavy.

It really makes me so mad because we have been so extra nice with her and she just keeps fucking it up. According to her grandmother she has been trying to get her stuff out since she moved out but for one reason or another she couldn't.

She still had the heat on 70 when I was there yesterday after going nuts about her spring heating biull being over $1000. I guess thats what you get when you leave the heat on between 70-80 24/7.

I kind of blame myself a bit because I saw her birth certificate yeserday and on the dining room table and she was born in 1991. Yes, she is 18. Had I known I would probably have never rented to her but I guess you can't do that anyways.

I think in the future I am going to back to students, they at least have to worry abou thtings like their credit score and having a place to live. My trial with the poor did not work out so well.
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Permalink: How_am_I_back_in_the_same_situation_.html
Words: 366
Location: Buffalo, NY


Category: buffalo

05/03/09 11:34 - ID#48580

Buffalo free market at Oxford and Ferry

Yesterday during our tree planting expedition we were cleaning up the trash from El Wasseems over by Ferry and Oxford and planting some tree over there.

Across the street there was The Buffalo Free Market. Looked pretty neat. I guess there idea is people bring stuff fthey don't want and trade or give it away. The people in the neighborhood seemed excited.

In this picture there were only a few people as they set up, but within and hour it was packed with people.
image

It was such a weird mix of urban punk and ghetto. I watched some people pouring vegtable oil intto thir car for biodiesel. The house they seemed to live in was a house on one side, but burned out without roof on the other. It reminded me of this one house in germany that was split in half, one side crumbling into decay and the other very up to date.

El Wasseems on Ferry and Main street has the most digusting corner on main street. It appears people buy stuff at El Wasem's go outisde, unwrap and throw the trash on the street. The was an unbeleivable number of cans, wrappers, bottles, bags, etc. I think that really the store needs to be held accountable for some part of it and should probably clean up around their storefront but clearly they don't. At least they should have a trash can outside. I guess the block club is thinking about installing a trash can there. We had wanted to plant trees but people just drive over the sidewalk too much for that and the baby trees are expensive.

It seemed like the area directly around El Wasem's had another kind of shopping going on that was totally unrelated to the Buffalo Free Market across the street. The kind of shopping where young kids buy something on the street from not people that live in the apartment buildings behind the store. As an example, For a while when we were cleaning some ~15 y/o on a skateboard was hanging out against the wall of the store looking really out of place. Then a dude comes out of the apartment building, he and the kid trade something in their hands and the kid takes off on a skateboard. Maybe they were trading baseball cards, I doubt it.
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Permalink: Buffalo_free_market_at_Oxford_and_Ferry.html
Words: 392
Location: Buffalo, NY


Category: body

05/02/09 03:12 - ID#48571

The smashed finger

At least I missed the joints.
image
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Permalink: The_smashed_finger.html
Words: 10
Location: Buffalo, NY


Category: linwood

05/02/09 09:03 - ID#48566

Planting Trees For Linwood

Our block club is planting ~30 new trees on linwood today. (e:matthew)
was an organizer. I never thought I'd be up shoveling at 9am on a
Saturday.
image
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Permalink: Planting_Trees_For_Linwood.html
Words: 30
Location: Buffalo, NY


Category: ladies

05/01/09 09:54 - 53ºF - ID#48561

Hetero-norminative Peaches

I am eating dinner at Bistro Europa with (e:terry) and these pretty ladies are fretting about someone calling them hetereo-norminative? I'm not even sure what that means butI am guessing from the conversation that it was said in a derogatory way.

On another front the police were beating down some black dudes outside the old KFC. The window is boarded up. Not sure if it is related.
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Permalink: Hetero_norminative_Peaches.html
Words: 68
Location: Buffalo, NY


05/01/09 06:10 - ID#48560 pmobl

Anything but sterile pads


To start out with, these pads are from Hills. When did they close
1989? Then they must have gotten wet, followed by dusty. I keep
asking myself why I hold onto them because anytime I need a sterile
pad - this us not what I am looking for.
image
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Permalink: Anything_but_sterile_pads.html
Words: 50
Location: Buffalo, NY


Category: work

05/01/09 04:23 - 61ºF - ID#48559

Roswell Recycling And Work

Seems like all the suggestions finally paid off as they are looking to implement Bottle and Can recycling at Roswell. I am posting this in case (e:libertad) or (e:tinypliny) are interested and didn't read the in betweeners. I only noticed it because I was reading it while waiting for something to upload.

[box]Recycle Committee Members Wanted

In response to a number of comments that have been received in the Suggestion Box, a small committee will be formed to address recycling of bottles and cans. If you are interested in participating, please contact Cynthia Schwartz via email at cynthia.schwartz@roswellpark.org. The committee will be made up of employees working in each of the 12 major buildings so that the logistics of recycling in specific buildings are taken into consideration as well as the process of collecting, storing, and returning bottles and cans. You will be notified mid-May regarding committee selection and the first meeting date.[/box]

I really wish I could be involved but I seriously don't have time for anything else.

I spent the day doing work for work althought it is my day off. I would say, I could just take the time off next week but I don't have time for that, argh.
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Permalink: Roswell_Recycling_And_Work.html
Words: 209
Location: Buffalo, NY


Category: housing

05/01/09 09:53 - 53ºF - ID#48551

It's all garbage

The plumber is here to fix a drain in our tub and he told me it is nice we kept this house up, most houses in the city are ripped apart. He would never live here anyways though cause the "neighborhood is garbage."
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Permalink: It_s_all_garbage.html
Words: 43
Location: Buffalo, NY


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