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paul’s journal

Crohn's Disease, Great ;(

· · 🌡️ 48°F

Well the doctor is pretty sure I have a long term chronic disease called Crohn's disease now that will probably make me go insane. That is not a side effect but knowing my ability to cope with stuff I think insanity might be in store.

Apparently, it is really bad that I didn't take the medicine before. I promise I will now. 9 Pills a day of asacol and I don't know how many yet of steriods. I never took steroid before - do they make you feel weird.

Here are the insides of my colon looking all sick and yucky.

image

I guess it helps to have a doctor who is a cousin. He told me it is genetic and when I said I didn't think anyone in my family had it, he said I was wrong.

It was so nice of @jenks to shows up and check on me as I woke up. It meant a lot.
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💬 13 comments

  1. janelle ·

    Wow, I'm sorry Paul.

  2. jim ·

    Sorry Paul!

    Hope the medicine helps you out a bit, at least.

  3. mrmike ·

    You've done it. I'm now nostalgic for the photos for your lunches around town. Kudos to Jenks for looking out. At least knowing what is going might slow down the insanity somewhat. Hope the new meds afford some actual relief.

  4. mrdeadlier ·

    I've got 2 friends that have Crohn's and from what I understand it can be rough. One of them is on the same medication I take for my spondylitis, Enbrel. I don't know what it does for Crohn's but it makes my symptoms literally non-existant.

    Anyway, this sucks for you and you have my sincerest condolensces.

    Just remember... Always always always take your meds!

  5. vincent ·


    First off I'm sorry Paul.

    My Ex-Girlfriend has it, so I have an idea of what you are going through.

  6. james ·

    Things could have come out much worse.... which is the crappiest silver lining ever.

    Sorry to hear Paul.

  7. metalpeter ·

    I'm not happy you are sick and you shouldn't be. But you should be happy that you know what it is. This way you can at least treat it and hopefully what ever you do for it will make things Better. I'm sure there are things that are a lot worse so I guess that is a good thing. Of course having chrons is bad but at least you know what it is and you can move on from there.

  8. mike ·

    THAT is horrible! That sucks majorly! So like you can't eat crazy things or drink a lot but are intravenous drugs still ok?

  9. leetee ·

    Oh, Paul, i am so sorry to hear it is Crohn's. That, well, just sucks.

    I don't know what else to say... except that i would love to say something that will make it better.

    Uhm... how about thanks for putting the bad bits of my day into perspective for me? Nah... that won't make YOU feel better!

    Take your meds? Yeah, you know that.

    Uhm... i like the other pics of your butt better? From the outside...

    I wish you well in managing this disease, Paul.

    Thanks, @jenks for being there when we all couldn't!!

  10. paul ·

    Ya, this morning when feeling really sick I was looking in the mirror and thinking why does the outside look so normal when the inside is falling apart.

  11. brit ·

    I'm sorry too paul....My mum's boyfriend has that and he had it in the days when they couldn;t do anything so he had a really bad time but you won;t because they treat it much better these days, you'll work out what offends your guts over time and you will be able to eat better after some trial and error....

  12. libertad ·

    I'm really sorry Paul that you are going through this. Have hope that you can keep it in remission most of the time. I'm sure the outlook you have can affect most anything. Maybe it will begin to subside when the stress of not knowing what is going on subsides. Keep us updated on how you are doing.

  13. fellyconnelly ·

    wow paul i'm so sorry for this... but you have to keep positive and be glad that you have a name for what ails you.... which means u can begin to feel better with the proper medicine...

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