Paul's Journal

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01/10/2008 23:59 #42830

Tastey food - I tried
Category: crohns

i had a good day at work today. With everyone gone I got so much work done, lol.

I hated being at the hospital

This is the you have crohns face

For breakfast I ate these pill with an egg, a banana and some apple sauce

So I am trying to make my low residue, low fiber diet taste good

For lunch I had my favorite, Dr. Praeger's potato coated, gluten free fish sticks

For dinner I ate potatoes with squids and asparagus. Notice the lack of potato skin. For some reason asparagus is on the low residue diet list. It must be low fiber. Everything is boiled to death, don't worry.

james - 01/11/08 12:31
That food looks super tasty.

iriesara - 01/11/08 11:31
Oh Paul your Crohn's face makes me want to cry! & give you a big HUG! love you little brother. email me.

fellyconnelly - 01/11/08 09:45
yum..... ? i think the pills looked the tastiest... sorry man...

01/10/2008 20:02 #42824

Web Job Offers
Category: work

Anyone else looking for a better PHP/Actionscript job? I am not so much right now. I get so many offers via estrip its insane. these ones are kind of generic and if anyone is interested go ahead and contact them.

@ 01/09/08 18:21@125.63.70.117 Guest wrote:
Urgent Requirement for Senior Php5 Developer in NYC, NY
Base Salary:100,000 /yr plus Benefits
Contact me for full Job Description | eugene AT indosys.com (Ph: 408-361-8159)

@ 01/05/08 10:57@99.248.18.40 Guest wrote:

Hello,

I found your info from a simple Google search, I am currently looking for freelance help (per project) on a variety of projects from Flash games (single and multi-player) to applications and websites.

Mainly AS2 and AS3 and well as implementation of graphics and some motion design.

If you are interested please feel free to reply to this email or contact me with some samples of your work or to add me to your MSN messenger so we can chat online.

I am not opposed to employees with a lot of moonlight time and welcome a reference to another flash developer you can recommend if you are not interested.

References links and code samples will be required.

Thank you,

--
Mike Sorrenti
T: 905 893 0861
F: 905 893 4397
Mobile: 416 857 4821
MSN: sorrenti_michael AT hotmail.com @

01/09/2008 21:57 #42812

Prednisone
Category: crohns

So I picked up the final Crohn's medication today - a steroid called presdnisone

. Theis brings me to an even 17 pills a day.

The side effects sound terrible. Not to mention it says right on the bottle to avoid contact with sick people as it suppresses your immune system. How the hell am I going to do that working at a hospital, in Buffalo during winter and living at a house where (e:matthew) nannies children. I seriously am going to need to be in a bubble. So basically, I can expect to get really sick on top of my really sickness. I want to just be put down. I feel like I should just go on vacation.

jbeatty - 01/10/08 19:43
I'm sorry about your ordeal Paul. I hope you start feeling better soon. The only side effect I had from prednisone was a little bit of weight gain, other than that it didn't really mess with my system too much.

jenks - 01/10/08 19:39
Don't be scared of the 'roids Paul. Every medicine has a huge scary list of side effects. But most of them are like 1 in a million. And you're not on it forever- just til things settle down.

And I bet you'll start singing the praises of prednisone soon enough, when you start feeling better. ;)

webnovice - 01/10/08 16:16
hang in there...just take one day at a time. Knowing the answer means that now you can manage it and new research every day means that someday this could improve even more.

ladycroft - 01/10/08 16:15
welcome to the intestinal disorders club :)

you'll be fine, it just takes time to get used to it.

mrdeadlier - 01/10/08 14:13
My Ankylosing Spondylitis (quite the mouthful) is an immunodeficiency in the same vein as Crohn's, I believe. Maybe I'm just lucky but out of the four in my household, I seem to get sick the least. So whatever.

At least I did get to stand in line (legitimately) with all the old folks a couple years ago when there was a flu shot shortage.

Like James said, eventually you learn to live with your malady and just accept it as part of life. The way I've always looked at mine is that it could have been worse, you know something that isn't chronic as much as it is terminal.

fellyconnelly - 01/10/08 09:59
i would totally make as many steroid jokes about myself as i could fit into a day if i were you. try to stay positive paul... you can beat all this and feel good again..

museumchick - 01/10/08 08:33
If you ever have any questions about Crohn's or anything, email me anytime. Are there any support groups in Buffalo? Maybe it would help to talk to others in person who are going through the same thing.

museumchick - 01/10/08 08:04
I know it sounds scary- but usually your body adjust pretty fast to prednisone. I've been on it off and on for seven years now, and I only experience those kinds of symptoms on the highest doses.

I'm really sorry you have to deal with this. I think you will start to feel much better once they find the right treatment. It's hard waiting in the mean time, though.

james - 01/09/08 23:14
As someone with a horrific chronic disease. At first it is really depressing and life just isn't worth as much as it used to be. But, then you get used to managing it and life moves on. So, hang in there, as they say.

lilho - 01/09/08 23:12
come visit meeeeeeeeeeeeeee!

matthew - 01/09/08 22:36
If my weak-ass immune system can handle the kids, i think you'll be okay. I'll be your disease buffer. Perhaps we can now convince terry that a 3 month sojourn to the south each winter would be good for invalids such as us.

01/09/2008 20:05 #42811

Low Fiber/low residue diet
Category: crohns

ANyone know of a good nutritionist in town? I get, I know why I have to eat it as part of my low reside/low fiber Crohn's diet but it seems to hard to think about eating the crap on my copyright 1998 list of food I can consume. According to it.

Fats I can eat:
butter, margarine

Fats I can't eat:
all others

That freakin' cannot be right. Haven't there been so many studies showing that mono and polyunsaturated fats are good for you. And clearly no fat has fiber. When I looked it up online

, which I am good at and have the ability to do, it says all oils are fine. But for many people getting this stupid piece of paper they might think they can only eat butter as a fat. It is such a disservice to people to have inaccurate information. The whole sheet has tons of contradictories and is missing commas all over so some of it makes no sense.

Thank god I can eat crispy bacon

Here is the whole list

jenks - 01/09/08 21:51
Ok Paul.
1: Sorry you got 'bad' news. BUT- at least now you have an answer, and can start treatment. It's a manageable disease for a lot of people. It's NOT the end of the world. AND- it's not your fault.
2: I would like to think that the things not allowed on a low-residue diet are high-residue. I do not think alcohol is high-residue. I also think that with all this push for high fiber diets, eat lots of fruits and vegetables etc, that it's funny to see fruit, vegetables, whole grains- the things we are always told are healthy- be off limits.
3: You are already NOT following doctors orders! He said you are not allowed to read the crap on the web. he said clevelandclinic.com and mayoclinic.com only!!
4: You're welcome- it was nice to escape from work for a bit anyway. :)

paul - 01/09/08 20:53
As (e:jim) noted in the chat, How am I going to live wihtout my scrapple?

brit - 01/09/08 20:30
yeah, it's because it's so personal from case to case...like epilepsy, you only know what to do and what not to do after doing it a bit...like water and fruit lots of sleep = good, heroin, lack of sleep and wendy's = seizure...not that I ever did heroin.

paul - 01/09/08 20:21
God, there is so much conflicting information :::link:::

brit - 01/09/08 20:19
oh and attacks are sometimes highly correlated with stress so you should be calm...always...

brit - 01/09/08 20:13
This is like a comprehensive list for the mean time you should stick to it but you should try things in a few months (one at a time not a wendys) and see what you can tolerate...Crohn's patients can reintroduce over time depending on the severity and frequency of attacks and stuff

01/09/2008 13:44 #42807

Crohn's Disease, Great ;(
Category: health

Well the doctor is pretty sure I have a long term chronic disease called Crohn's disease now that will probably make me go insane. That is not a side effect but knowing my ability to cope with stuff I think insanity might be in store.

Apparently, it is really bad that I didn't take the medicine before. I promise I will now. 9 Pills a day of asacol and I don't know how many yet of steriods. I never took steroid before - do they make you feel weird.

Here are the insides of my colon looking all sick and yucky.

I guess it helps to have a doctor who is a cousin. He told me it is genetic and when I said I didn't think anyone in my family had it, he said I was wrong.

It was so nice of (e:jenks) to shows up and check on me as I woke up. It meant a lot.

fellyconnelly - 01/10/08 09:55
wow paul i'm so sorry for this... but you have to keep positive and be glad that you have a name for what ails you.... which means u can begin to feel better with the proper medicine...

libertad - 01/09/08 19:58
I'm really sorry Paul that you are going through this. Have hope that you can keep it in remission most of the time. I'm sure the outlook you have can affect most anything. Maybe it will begin to subside when the stress of not knowing what is going on subsides. Keep us updated on how you are doing.

brit - 01/09/08 19:38
I'm sorry too paul....My mum's boyfriend has that and he had it in the days when they couldn;t do anything so he had a really bad time but you won;t because they treat it much better these days, you'll work out what offends your guts over time and you will be able to eat better after some trial and error....

paul - 01/09/08 19:37
Ya, this morning when feeling really sick I was looking in the mirror and thinking why does the outside look so normal when the inside is falling apart.

leetee - 01/09/08 19:01
Oh, Paul, i am so sorry to hear it is Crohn's. That, well, just sucks.

I don't know what else to say... except that i would love to say something that will make it better.

Uhm... how about thanks for putting the bad bits of my day into perspective for me? Nah... that won't make YOU feel better!

Take your meds? Yeah, you know that.

Uhm... i like the other pics of your butt better? From the outside...

I wish you well in managing this disease, Paul.

Thanks, (e:Jenks) for being there when we all couldn't!!

mike - 01/09/08 18:57
THAT is horrible! That sucks majorly! So like you can't eat crazy things or drink a lot but are intravenous drugs still ok?

metalpeter - 01/09/08 17:45
I'm not happy you are sick and you shouldn't be. But you should be happy that you know what it is. This way you can at least treat it and hopefully what ever you do for it will make things Better. I'm sure there are things that are a lot worse so I guess that is a good thing. Of course having chrons is bad but at least you know what it is and you can move on from there.

james - 01/09/08 17:42
Things could have come out much worse.... which is the crappiest silver lining ever.

Sorry to hear Paul.

vincent - 01/09/08 16:11

First off I'm sorry Paul.

My Ex-Girlfriend has it, so I have an idea of what you are going through.

mrdeadlier - 01/09/08 15:37
I've got 2 friends that have Crohn's and from what I understand it can be rough. One of them is on the same medication I take for my spondylitis, Enbrel. I don't know what it does for Crohn's but it makes my symptoms literally non-existant.

Anyway, this sucks for you and you have my sincerest condolensces.

Just remember... Always always always take your meds!

mrmike - 01/09/08 14:19
You've done it. I'm now nostalgic for the photos for your lunches around town. Kudos to Jenks for looking out. At least knowing what is going might slow down the insanity somewhat. Hope the new meds afford some actual relief.

jim - 01/09/08 13:54
Sorry Paul!

Hope the medicine helps you out a bit, at least.

janelle - 01/09/08 13:50
Wow, I'm sorry Paul.