Category: health
02/24/10 08:45 - 30ºF - ID#51071
Kidney Stone
January 21st, 2010 awake at 12:30am to pee. I crawl back in bed. I just get comfortable and a burning pain begins and I need to pee again. So I get up and pee, this time it really hurts. I proceed to have increasing pain and cramping on my left side. I start what I like to call the cold sweats because I was sweating but I was far from warm. I was nauseated. I began to push my fluids. 1 Liter. Another Liter. The pain is stil causing problems and it has been two hours. I called the nurses emegency line for my doctor and got a nurse to return my call. I followed medical advise and the pain began to ebb slowly and aroun 5:30am I could crawl back into bed really, really exhausted. I had to call in sick to work. I would call the doctor's office in the morning when they opened to find out what to do next. I realized I had a kidney stone in my left kidney.
January 22, 2010 after work I headed to the doctor's office my pcp wanted to get a better look at me since it would take 2 weeks to see the urologist. I definately had a problem. The pain was still there and I was really tender. I began to think, when was the last time I had a kideny stone. 1999. Over ten years ago, I must have been doing something right. We decide to get pain pills and a sonogram to rule out kidney stones, just in case.
February 1, 2010 I go first thing in the morning for the earliest appointment I could get because I was not supposed to eat or drink anything. I got my sonogram. The technician was really nice but showed me this roundish thing the size of a green pea on the screen in my kidney. I was posiive I had a stone. I was told that without a shadow that the test was inconclusive.
February 5, 2010 I finally see the urologist. I pee in a cup. I answer a million or so questions. I fill out forms. Since I have not had a stone in a long time I go back to being a new patient. SIGH. I see a new doctor. I just want to confirm what my gut tells me - that I have a kdney stone. I am still in pain and discomfort on a daily basis. We discuss the fact that the sonogram is nonconclusive. What test will give us the correct answer? A CAT SCAN, I'm allergic to cats! Ok. I have to have the nurse schedule one and she will call me.
She calls me. After numerous phone calls I have an appointment. SIGH.
February 15, 2010 Cat Scan went smoothly. I was completely tired that day and took the rest of the day off to read and nap alternately. Daily pain can make you really tired.
February 18, 2010 I wake up and I am completely grumpy and irrasible, I also share this infrmation with all who ask. I go back to the urologist. I pee in a cup. I see a middle level physicans assistant whom I really discover I dislike. The Cat Scan confirms I have a 6 mm stone in my left kidney. I am relieved finally proof of my gut! He decides that the pain i am in is skeletal-muscular and I am not taking my pain meds correctly. I argue since I have been an athelete for a better part of my existance I explained in grave detail why I disagreed. Well, then we are going to put you on a diet because you have an abundance of this kind of stone. I'm like REALLY?! Have you read my chart? He looks slightly confused. He is only holding two pieces of paper in his hands. I inform him of my urological history. This is my 33rd stone since I was diagnosed in my early 20's. I make all five kinds of stones. I am allergic to 1 of the 5 pain medication families. I went in for emergency treatment due to being on pain medication so that when I had to pass the stone, pain meds did not work on me. After 19 1/2 hours of pain, I learned a very valuable lesson, do not abuse pain medication if you want it to work when you really need it. SO. Now that we know I have a stone and it is too large to pass on its own. AND it is causing me to have blood in my urine and pain in my side, WHAT are WE going to do about MY problem? Then I am treated to palpitations of my kidneys. Right - can you keep doing that, it feels good. Left - OOOOOOOOOOOOO, still holding my breath, IT REALLY HURTS! Well, you need to have an x-ray done to determine the next course of treatment. Really? YES. Okay.
I go to eat lunch with my mother at IHOP on the way to the hospital to get an x-ray. I need to take a pain pill. I have the cold sweats again. I am in and out of the bathroom for the better part of an hour. Finally we head to the hospital.
I get the x-ray taken at the hospital. They will have the information in a day or two.
February 23, 2010 I am watching the Olympics and enjoying a good book during the commercials covered up on the couch. When out of no where I am in extreme pain. .5 - 1 - 2 - 3 - 4 - 4 - 4... staring to reach toward five. I drink, gulp water at last 8 oz. I try to stretch my body to lay flat. I am having a hard time taking a deep breath due to the pain. I focus on my breathing and slow down and try to relax my muscles. Finally after about 5 minutes the pain went back down to .5. I went back to reading and watching tv. I dozed off for about an hour after the episode of pain and then I put myself to bed with the firm notion I need to talk to a doctor and soon.
February 24, 2010 I am on the phone off an on all day trying to find out what the next course of action is supposed to be. Yes, my symptoms are still the same. Answer more questions. The urologist will review my charts and tell me the next course of action. I wait. Have I mentioned I hate waiting? Strong words, but true. I have to schedule a cystoscopy. I schedule the cystoscopy. I am nervous and constantly reminded by the pain that it is not going to go away on its own.
January 22, 2010 after work I headed to the doctor's office my pcp wanted to get a better look at me since it would take 2 weeks to see the urologist. I definately had a problem. The pain was still there and I was really tender. I began to think, when was the last time I had a kideny stone. 1999. Over ten years ago, I must have been doing something right. We decide to get pain pills and a sonogram to rule out kidney stones, just in case.
February 1, 2010 I go first thing in the morning for the earliest appointment I could get because I was not supposed to eat or drink anything. I got my sonogram. The technician was really nice but showed me this roundish thing the size of a green pea on the screen in my kidney. I was posiive I had a stone. I was told that without a shadow that the test was inconclusive.
February 5, 2010 I finally see the urologist. I pee in a cup. I answer a million or so questions. I fill out forms. Since I have not had a stone in a long time I go back to being a new patient. SIGH. I see a new doctor. I just want to confirm what my gut tells me - that I have a kdney stone. I am still in pain and discomfort on a daily basis. We discuss the fact that the sonogram is nonconclusive. What test will give us the correct answer? A CAT SCAN, I'm allergic to cats! Ok. I have to have the nurse schedule one and she will call me.
She calls me. After numerous phone calls I have an appointment. SIGH.
February 15, 2010 Cat Scan went smoothly. I was completely tired that day and took the rest of the day off to read and nap alternately. Daily pain can make you really tired.
February 18, 2010 I wake up and I am completely grumpy and irrasible, I also share this infrmation with all who ask. I go back to the urologist. I pee in a cup. I see a middle level physicans assistant whom I really discover I dislike. The Cat Scan confirms I have a 6 mm stone in my left kidney. I am relieved finally proof of my gut! He decides that the pain i am in is skeletal-muscular and I am not taking my pain meds correctly. I argue since I have been an athelete for a better part of my existance I explained in grave detail why I disagreed. Well, then we are going to put you on a diet because you have an abundance of this kind of stone. I'm like REALLY?! Have you read my chart? He looks slightly confused. He is only holding two pieces of paper in his hands. I inform him of my urological history. This is my 33rd stone since I was diagnosed in my early 20's. I make all five kinds of stones. I am allergic to 1 of the 5 pain medication families. I went in for emergency treatment due to being on pain medication so that when I had to pass the stone, pain meds did not work on me. After 19 1/2 hours of pain, I learned a very valuable lesson, do not abuse pain medication if you want it to work when you really need it. SO. Now that we know I have a stone and it is too large to pass on its own. AND it is causing me to have blood in my urine and pain in my side, WHAT are WE going to do about MY problem? Then I am treated to palpitations of my kidneys. Right - can you keep doing that, it feels good. Left - OOOOOOOOOOOOO, still holding my breath, IT REALLY HURTS! Well, you need to have an x-ray done to determine the next course of treatment. Really? YES. Okay.
I go to eat lunch with my mother at IHOP on the way to the hospital to get an x-ray. I need to take a pain pill. I have the cold sweats again. I am in and out of the bathroom for the better part of an hour. Finally we head to the hospital.
I get the x-ray taken at the hospital. They will have the information in a day or two.
February 23, 2010 I am watching the Olympics and enjoying a good book during the commercials covered up on the couch. When out of no where I am in extreme pain. .5 - 1 - 2 - 3 - 4 - 4 - 4... staring to reach toward five. I drink, gulp water at last 8 oz. I try to stretch my body to lay flat. I am having a hard time taking a deep breath due to the pain. I focus on my breathing and slow down and try to relax my muscles. Finally after about 5 minutes the pain went back down to .5. I went back to reading and watching tv. I dozed off for about an hour after the episode of pain and then I put myself to bed with the firm notion I need to talk to a doctor and soon.
February 24, 2010 I am on the phone off an on all day trying to find out what the next course of action is supposed to be. Yes, my symptoms are still the same. Answer more questions. The urologist will review my charts and tell me the next course of action. I wait. Have I mentioned I hate waiting? Strong words, but true. I have to schedule a cystoscopy. I schedule the cystoscopy. I am nervous and constantly reminded by the pain that it is not going to go away on its own.
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I hope you get better soon and the stones NEVER come back. Sending a million wishes and thoughts your way!! Good luck!
Sorry about your ER experience.
And I'm not a urologist, but if I remember right, once stones are really big- they're just too big to pass. And then you just don't worry about them. They're in there, and they're not budging, so you don't have to worry about them. But i'm not sure what the size cutoff is. 6mm is pretty damn big.
Jenks - Yes, I agree most kidney stones are 10/10. Hell, one of them almost killed me and that day I was screaming 25/10! This stone has pushed up to an 8/10. I am really specific about the pain because of the amount of stones I make. The daily discomfort running from .5 to 3/10, really wears me down. I guess in the range of kidney pain. My co-workers asked me what it feels like and I'm like hummm... well it is a combination between a toothache and a migraine headache in your kidney. Nevermind the side effects that you are having problems with eating and eliminating, usually. Yes, I have had ESWL. I needed five stints to keep my urine flowing due to inflammed and closed tubes during that episode. When I first got diagnosed I wanted to keep them and name them, Fred, Ethyl, Murray... etc. You get the idea. I found keeping my sense of humor saves me more often than not!
I don't always trust the ER. That is where I almost died. It is a strange experience to have almost died in the waiting room of an ER after being sent home from the ER at like 3am. It turns out at the change of shift the doctor on call thought I was faking it and sent me home with a script for pain. I had to wait til someone could pick me up at 6am. I am feverish, puking, trying to eliminate in the ER bathroom, I was three shades of grey and they would not readmitt me. See the 1st doctor wanted to keep me for observation and told my family to take my personal belonging home, including my purse and extra clothes. I was trapped and wanted help. I got it the next day when I visited my PCP who had a urologist for a friend and saved my life. I should have sued! SO I am really vigilant about my stones, but since I am not medically trained I do not always have the right answers. I am also out of kidney stone shape so to say, I used to get at least one every year. It has been 10 years since my last one. I must have done something right?! This one being 6mm has got me seriously concerned. WHEN it moves I could be in serious trouble and be a case for the emergency room, which I am trying to avoid for my sanity and my finances, as well as my health. I am not really interested in another near death experience. This situation reminds of when I was helping some friends move a 6 foot couch in a 5 foot doorway. I told them it is a mathmatical certainty they are not going to get it up the stairs unless they take out a window and haul it up. I am pretty sure that my urethra is not going to take 6mm round diameter smoothly and or not cause an obstruction which sends the pain into astronomical terratories of pain!
Oh, my tantrum came with a quiet certainty that I have a stone and they do not know what to do about it. I keep saying what is the next course of action? I understand the concept of measure twice, cut once. I prefer less invasive procdures. WHEN that pain come hitting the top limits of my sanity I will attempt to rip it out myself and am not looking forward to the immenate pain to come. It does cause one to get religion! I do pray alot. Diety gave me a brain and I am using it to the best of my ability. I also have a big mouth. It is on my mind almost all day, every day. Working with children is a strange blessing, because they want to know the truth (refreshing) and they sincerely love you and do not want you to be hurting. One can find strength in the strangest situations.
Thank you. It helps that someone is sharing the worry. Does that make any sense? I think the worry holds back the fear and that allows me to take the pain head on, maybe thats how I am being brave. I always look at everyone with a queer face when they tell me I am doing good. I think of the movie 28 days: "I do not have the option to take more days than one at a time. What does your neck sign say?"
I know I have had a cysto before, but it is surrounded by pain med and is a bit fuzzy. I am going to be fully alert this time and am not sure I want this experience either, but it is coming. I kind of wish it was like the movies and I could enjoy the picture/procedure!
Have you ever had ESWL?
And finally- just wanted to give you a little shout-out for calling your excruciating pain only a 5. You go. I think stones are one of the few things that are legitimately 10/10 pain. Usually you see the opposite- big baby men calling their hangnail a 12/10. And also props to you for NOT doing this all via the ER- though, again, I think it could have been justified, and I am impressed with your patience. Waiting days for a CT and not having a tantrum?! I wish all patients were like you!
Feel better!!! good luck with the cysto.