yes, (e:paul), we saw one of the doctors that is part of the wnyneuro-oncology group, dr. pollina.

funny thing is, is that he also works at the same place as the first neurosurgeon dr. castaglia, who said we need to have the surgery right now because it's such an emergency.

so we meet with dr. pollina at roswell, and after reviewing the MRI's and reports and after examining my dad, he said that he's not even sure if it's a tumor!

how is it possible that there are 3 different doctors with three different opinions?!?!

the first says that it's a tumor and it has to be operated on right now.

the second says that it's a tumor and that it's inoperable.

the third says it might not be a tumor and let's take some drugs and do some more tests and repeat the MRI in two weeks and see what happens.

i was having major doubts about this surgery from the get go. the MRI report clearly stated that although it looked like it's a intramedullary tumor, other things, such as meylitis (inflamation of the spine) cannot be ruled out. after speaking with (e:jenks), i understood that radiologists often put that kind of stuff in reports to cover their own ass, however, i felt as if there was not enough information and too much doubt and much too much haste, to warrant such a huge and risky operation.

there needs to be more testing done, such as a spinal tap, to see what is possibly floating around in the fluid (such as viruses or cancer cells, which could give a clearer picture of what we're dealign with) and more scans, to see if there is a change in the size of the lesion and blood work to see if there is some kind of an infection going on. it just really baffles me as to how these other doctors (drs. castagllia and kowalski( the orthopedic surgeon, that was going to assist in the surgery by cutting the vertebrae)) rushed into this surgery without doing any of these things. i wonder what this doc will say to the other doc when he see's him at work. i often wonder if they like see each other in the hallway and are like, "dude, wtf were you thinking?" probably not.

apparently, he (dr. pollina) called the other doc (dr. kowalski) to tell him that the surgery is off. my mom called both, castagllia and kowalski, today to try to get this straightened out, and un-surprisingly, they did not even return her call.

(funny thing is that they called us 4 times yesterday and the day before to make sure that we don't stall on the surgery and to make sure that we it doesn't take too long to see the roswell guy because we don't have the luxury of time)

the roswell guy (dr. pollina) said , frankly, if it's a spinal tumor, whether we have the surgery this friday or three weeks from now, it doesn't matter, it's bad news either way. but to have such risky surgery for something that was not surgical or if surgery would be of no help, that would be much worse.

ugh, i just want to choke dr. castagllia and dr. kowalski . they are just dropping the ball on everything. dr. kowalski is the guy who initially said "oh this is not a back problem, you have bad hips and you need to have both of your hips replaced. that's why you're having all these issues" um....buddy....if this was a hip replacement problem, would my dad be having pissing issues and sudden onset of burning sensation in his thighs and numbness throughout his entire legs all of a sudden? if your hips were in such bad shape, wouldn't you kind of know that? wouldn't that happened gradually, over time? wouldn't you have increasing walking issues as opposed to a sudden onset? i mean, wtf, even i can figure this out, with a little bit of common sense and google.

his problem is that he's cocky and he doesn't listen. he didn't do a through examination when he saw my dad. he didn't even touch him. how do you skip something like that when you have a patient that has an acute onset of symptoms that are progressing so rapidly and is losing his ability to function? that cocky son of a bitch assumed what he thought the issue was, ignored what my father told him, and tried to bamboozle us into an operation that could possibly leave him paralyzed for life.

dr. castagllia, who is apparently a buddy of his, since they do these kinds of surgeries together, (one cuts the bone, the other cuts the spine) never even had the MRI report that was done on the spine when he met with us and told us we need the surgery. he never even had any blood results, never spoke to my father before making his diagnosis, never physically examined my dad, never requested any additional tests. he decided on the surgery before he walked into the examining room from just talking to dr. kowalski.

what is it? is it the novelty of the condition? do they just want to go in there to poke around because this is so rare and they want to explore? or is it the money they would get to bill the insurance for? i mean, this kind of operation must cost tens of thousands of dollars, right? or is it because their egos prevent them from seeing the bigger picture or prevents them from saying that they are not sure, or is it because they are lazy and don't want to take the time to see the big picture.

i feel like (e:paul) right now. i am so fucking fed up with this shit and these doctors and the whole medical system and i'm sure there is plenty more shit to come.

p.s. i know this post is so damn scattered and long i'll be surprised if anyone can make any sense of it, but i just want to get it down on paper, for my own sake.

it couldn't get any worse.

as you guys know i live with my mom...and dad. they're both relatively young. she's 59, he's 57. he's been having some issues with walking. major fast onset issues without any injury. all the doctors were like, oh it's a nerve problem, you have some herniated disks, etc etc etc.

well, today my mom came home and said that it's cancer of the spine.

omg, you guys have to watch this. it made me laugh my ass off today.

i just got a message on myspace from someone that i was once very close to. it was very sweet. lord knows i needed that right about now. i'm not sure if the last post was the reason or just a coincidence. whichever it is, thank you.

for those of you who don't want to read depressing stuff, it's probably a good idea to skip over this one (and many more to come).

there are some major issues going on. today we are going for our third opinion regarding my dad's cancer. apparently spinal cancer is very rare. much more rare than brain tumors. usually, when you have cancer of the spine, they are secondary cancers that have metastasized from somewhere else, like the lungs, prostate, or breast. the good news is that this is not the case for my dad. he does not have lung cancer that has spread everywhere, but rather a single tumor that stems from the spinal cord itself. this type of tumor is called a intramedullary tumor.

however, the problem is that the tumor is growing from the inside of the spinal cord, out. pushing the the healthy tissue of the cord against the spinal cavity. and the other problem is that we have two different opinions as to what can/should be done. the neurosurgeon that we saw, who works with the orthopedic surgeon (who initially misdiagnosed the condition saying this was an issue with his hips and he needed to have operations to replace both of his hips) says we have absolutely no time and need to get the surgery done this friday. the other opinion, coming from the neurologist, is saying that this is inoperable and will most likely leave him paralyzed.

i mean, how do you cut into the cord to get to a tumor that is growing on the inside? in addition, the tumor is so long, that they would have to break at least 6 vertebrae to get to it. the tumor stems from vertebra T8 all the way down to L1. think about your back and feel with your fingers the vertebra bulges on your back, start somewhere in the middle of your back and move down 1, 2, 3, 4, 5, 6 vertebra. that's how long the tumor is. so they would have to cut the cord length wise and that means that they will have to break all of those bones in order to get to the cord. that in it's self is major recovery time.

my dad has left the course of his treatment entirely up to my mom and me. whatever we decide to do is what he will do.

so today we are meeting with roswell to see what options he may have, and although i am sure surgery is unavoidable, i'm not sure i want him to go through all of that if the benefits will be minimal or he'd be much worse.