Paul's Journal
My Podcast Link
05/06/2011 13:08 #54227
fun with tetnus05/05/2011 09:50 #54219
Orange Tongue at The GastroenterologistCategory: orange tongue
Also has no idea about the orange tongue. He seemed totally surprised by it. Thinks maybe acid reflux, maybe the tooth, maybe something else but not related to Crohns. The fact that terry also has an orange tongue was the real strange part. He kept referring to my UC, and I was like, "I thought I had crohns?" He now seems to think it is UC instead which I guess is better and I can cut the meds from 3 to 2 pills a day.
The doc gave me a script for a test called prometheus IBD Serology 7. "Helps identify IDB and differentiate between UC and CD. Includes 7 tests: ASCA IgA, ASCA IgG, Anti-OmpC IgA, Anti-CBir1, NSNA ELISA, IFA perinuclear pattern, IFA DNase sensitivity."
He also told me to try prilosec for a short two week stint to see if it helps with orange tongue and to rule out GERD.
I think I am finally at the point where I am just going to try acupuncture. I mean I have spent probably $200 in copays at this point and gotten nothing from western medicine. Maybe its time to try something else.
The doc gave me a script for a test called prometheus IBD Serology 7. "Helps identify IDB and differentiate between UC and CD. Includes 7 tests: ASCA IgA, ASCA IgG, Anti-OmpC IgA, Anti-CBir1, NSNA ELISA, IFA perinuclear pattern, IFA DNase sensitivity."
He also told me to try prilosec for a short two week stint to see if it helps with orange tongue and to rule out GERD.
I think I am finally at the point where I am just going to try acupuncture. I mean I have spent probably $200 in copays at this point and gotten nothing from western medicine. Maybe its time to try something else.
05/05/2011 00:26 #54218
Wegmans gnocchi - yuckCategory: food
The most disgusting gnocchi ever smelled. They smelled sour like rotten fruit. I tried to boil them anyways for some reason and the the whole kitchen smelled. Is that just what stuff with preservatives smell like or were they bad. Either way I would never buy them again. They smelled so much I had to take the garbage out after I through them out.
lilho - 05/06/11 00:51
the pasta i ate was delish...... i think we should make pasta when i visit in aug. get (e:terry) to the canning...
the pasta i ate was delish...... i think we should make pasta when i visit in aug. get (e:terry) to the canning...
tinypliny - 05/05/11 08:28
You should write a complaint with the box number. They take consumer complaints seriously. Maybe something went terribly wrong with this batch?
You should write a complaint with the box number. They take consumer complaints seriously. Maybe something went terribly wrong with this batch?
flacidness - 05/05/11 01:04
They look like over weight maggets! Yuck indeed
They look like over weight maggets! Yuck indeed
05/04/2011 22:33 #54217
Scorpion Pose - VrschikasanaCategory: yoga
Tonight at yoga I was able to sort of do the scorpion pose. I was a bit shaky though. I am going to practice more and get good at it. The people that are stepping on their own heads blow my mind.
I stole this pic from about.com
I will replace it with one of myself as soon as I can get someone to take it.
I finally have an appointment for my orange tongue tomorrow but its at 7:45am near UB North Campus. I have not been up that early since the 90s.
I stole this pic from about.com
I will replace it with one of myself as soon as I can get someone to take it.
I finally have an appointment for my orange tongue tomorrow but its at 7:45am near UB North Campus. I have not been up that early since the 90s.
metalpeter - 05/05/11 17:30
Hey if I could get to stepping on my hands maybe there is something I could do Ha... Kidding never thought about flexibility the other way Ha... that look like a movie Martial arts move.......
Hey if I could get to stepping on my hands maybe there is something I could do Ha... Kidding never thought about flexibility the other way Ha... that look like a movie Martial arts move.......
tinypliny - 05/05/11 08:11
While you keep getting better and better, I am on a serious spiral out of any exercise. I missed ballet this week, yoga for the past several weeks, I have given up salsa and hip hop because there is simply no time in my life right now.
While you keep getting better and better, I am on a serious spiral out of any exercise. I missed ballet this week, yoga for the past several weeks, I have given up salsa and hip hop because there is simply no time in my life right now.
flacidness - 05/05/11 01:00
Hahaha!!! That is pretty early.
Hahaha!!! That is pretty early.
05/04/2011 22:27 #54216
Imagine this fun scenarioCategory: work
This probably won't make any sense but I will know what its about when I read it ten years later.
Imagine there is this self important, needy, gold digger who lives in your neighborhood. Not only is she loud and obnoxious, she also only speaks a foreign language with a irritating, sharp accent.
Then imagine all of a sudden, you find out she is possibly moving in with you and you may have to dedicate your life to her needs and wants. To make it worse she comes with this whole entourage of loud pimps and they are going to rip out the gardens you built and replace them with a asphalt pad and a vending machine which sells even more things that attract even more pimps.
Then imagine everyone around you saying, well if she lives with you, you no longer have the neighborhood restrictions on your property. You can rent the attic without a fire escape or even build a freaking waterslide out the front window. Would you hate her any less? What if it meant you had to give up english?
Imagine there is this self important, needy, gold digger who lives in your neighborhood. Not only is she loud and obnoxious, she also only speaks a foreign language with a irritating, sharp accent.
Then imagine all of a sudden, you find out she is possibly moving in with you and you may have to dedicate your life to her needs and wants. To make it worse she comes with this whole entourage of loud pimps and they are going to rip out the gardens you built and replace them with a asphalt pad and a vending machine which sells even more things that attract even more pimps.
Then imagine everyone around you saying, well if she lives with you, you no longer have the neighborhood restrictions on your property. You can rent the attic without a fire escape or even build a freaking waterslide out the front window. Would you hate her any less? What if it meant you had to give up english?
metalpeter - 05/05/11 17:28
Well Knowing (e:paul) and that is says work that it is some computer related a thing... I know he is an anti mircosoft guy... So I'm guessing it has something to do some kind of computer program that is used for one thing but makes everything else worse because of that program it only works with other certain programs......
Well Knowing (e:paul) and that is says work that it is some computer related a thing... I know he is an anti mircosoft guy... So I'm guessing it has something to do some kind of computer program that is used for one thing but makes everything else worse because of that program it only works with other certain programs......
jon - 05/05/11 12:45
Oh man, I don't want to give up "English" for "Chinese".
Oh man, I don't want to give up "English" for "Chinese".
tinypliny - 05/05/11 11:33
If I had to take an educated guess at the analogy, I would say this is about some future-incompatible terrible vendor application at work.
It makes sense now.
If I had to take an educated guess at the analogy, I would say this is about some future-incompatible terrible vendor application at work.
It makes sense now.
paul - 05/05/11 09:36
I figured this would not make sense to anyone else. It is analogy for something completely unrelated.
I figured this would not make sense to anyone else. It is analogy for something completely unrelated.
leetee - 05/05/11 08:51
"This probably won't makes sense...."
Uh, yep, it doesn't make sense, at least to me.
"Imagine This Fun Scenario"
Doesn't sound the least bit fun to me...
"This probably won't makes sense...."
Uh, yep, it doesn't make sense, at least to me.
"Imagine This Fun Scenario"
Doesn't sound the least bit fun to me...
tinypliny - 05/05/11 08:10
!!! What have you been smoking?
!!! What have you been smoking?
I don't take any vitamins.
I can't believe I didn't ask this before but do you eat Vit B complex or any Vit B everyday?
Too bad. I picked him because he is in infectious diseases and he has co-authored this paper: :::link:::
I called him an explained the situation to his appointment line. They said that he doesn't deal with that kind of thing. Its mostly diabetes based wound care and infections.
His specialty is infectious disease... Also, not sure he has an active microbiology lab, but he might have research going on. :::link:::
I am not sure how primary practice works here though. Can you ask for a consultation with anyone?
Do you tell them how horribly your life has been affected because of this? If not, you should. You see, you seem motivated to find out what is the orange thing here on your blog. But they have no idea about how it is consuming your life. They should. It automatically then places it in the category of a primary symptom.
I don't know really. I guess the fact that it doesn't cause pain makes them not care. I mean besides being unsightly I am not sure what its doing.
Everytime I went to the otolaryngoloist I got a different student doctor who never has any idea and is always gone the next time I visit. They always suggest more magic mouthwash or "some people's tongues are all different colors", or "maybe it autoimmune." , "lets just monitor it some more and see, make an appointment for 2 months from now" or my very favorite: "are you sure you haven't eaten anything orange?"
I think I have been there 5 times. Do you know a better doctor who would do a culture? I would gladly go to anyone who is interested in figuring it out.
Last few months.. of which you have a distinct timeline. Would you mind if I posted your reconstructed timeline from your emails to me on my blog?
BTW, I knew what you meant. I was just feeling annoyed about a completely different run in with "western medicine" (my parents back home have a similar war with diagnosis going on). Things like this make me want to return to primary care practice.
So why aren't they doing a culture??
Thats not true. I don't mean relief from western medicine. I mean't identification of the problem. To me it seems if (e:terry)'s tongue is also orange it is something we have or something in our environment. It seems like tests could devised to determine the nature. That what I expected. Not a cure but rather an identification of the problem. I don't believe this was years in the making as it distinctly started this within the last few months and (e:terry) has no history of any digestive issues like I did.
Strangely, since the orange tongue I have eaten so much less protein. To rule that out. My urine and salva PH are pretty normal. My diet is mostly vegetables, brown rice, white rice and some fruit. I gave up protein shakes. I have had one this month. None of those things changed anything. My tongue is still freaking orange.
Lets say (e:terry) didn't exist. In that case, I guess with the prolosec I thought of it as more of an identification method. If taking the prilosec makes the orange tongue stop it would seem like I then could stop it and try and modify my diet further. However, if the prilosec did nothing then we could just lee out GERD. Part of me is slightly terrified of trying it because if it reduces your stomach acid, is it just going to make me more susceptible to orange tongue pathogen?
The gastro and dentist said I could try removing the metal tooth as some people have reaction to metal that change the color of their skin.
I mean they are doing this surely expensive genetic test for for Crohns/UC differentiation/identification you think they could try a simple culture of the orange tongue to try and identify a pathogen, so that at least that could be ruled out.
I still want to try the controlled diet experiment - this time controlling EVERYTHING, breakfast, lunch, dinner, snacks, everything. But I honestly have no time even to eat properly these days. :/
When you say you have received nothing from western medicine and are ready to try anything, what you are saying is that you get no *instant relief* from anything. That, in a nutshell, is what western medicine is ALL about. Instant pill. Instant relief. The concept of prevention is brought out as a facade whenever it is convenient - sometimes never.
The "something else" is non-evidence based kooky and often exotic stuff which may or may not work but it ALSO atrociously expensive. Again, prevention is a concept that is never explicitly stated in alternative medicine. Prevention takes a LONG time, a lot of patience and there is no instant anything. By LONG, I mean YEARS, DECADES. And why should it be any different than that? How can you expect to fix anything that has broken over years and decades in a month or less? It is llogical.
/Friday morning crazy rant over.
Short two week = Long one month = Year-long trial = Lifelong dependency.
Who brought up the GERD btw?
And there it is. Prilosec.
:/
If you are 100% Terry has it...that means
a) its from a common shared environment - including food, microbes.
b) OR its contagious... does Matthew have it? Have you checked?
Terry definitely has the orange tongue? Are you sure?
UC -> Ulcerative Colitis.
What is UC? I tried acupuncture for quitting smoking and it didn't help at all, not that it might not help you.