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Paul's Journal

paul
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01/24/2008 12:31 #43010

On The phone waiting
Category: crohns
I spent so much of the morning on the phone waiting on hold to try and get all my medical records and test results to one place for a doctors appointment this afternoon.

Luckily, you can program and wait so it wasn't so bad. I am going to try and get my own copy of it all, now that it is in one place. This should be exciting to see one gastro enterologist who specialized in these types of problems, with all my test results (CT, colonscopy, and blood test) all in one place.

The doctor is Dr. Bartolone over at Buffalo Gastroentrology Associated at 60 Maple Rd.

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zobar - 01/24/08 13:10
The name sounds familiar … Maybe that was the dude I went to kind of a while ago when I was having some stomach problems?

Before I even told him what was wrong he looked at me and said holy Jesus you shouldn't have waited so long to call me. It took a bit of talking to convince him I hadn't drastically lost weight. [He's kind of a big dude.]

- Z

01/24/2008 10:16 #43007

Stupid Zits
Category: health
Argh, the steroids are starting to give me zits on my face. I never had zits like this before.
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mrdeadlier - 01/24/08 13:49
Sara is right. This is the first time in several blog posts where I do NOT feel sorry for you, lol.
iriesara - 01/24/08 11:56
Oh my gosh you got a pimple, I feel really really bad for you. What's that make, a couple every 31 years? you poor poor thing. Welcome to the world of regular skin Paul. Let's see, debilitating intestinal pains.....pimples, hmm, which should you roll with? Just put some clay on those bitches, you'll be fine...Even in that close-up picture you can barely see them.
jim - 01/24/08 10:21
At least you'll also get super strength.

01/23/2008 21:07 #43004

wegmans has free wifi now
Category: mobile
how great is that. makes shopping with the not phone great. and they have a page for recipes and shopping tips, sales etv. go wegman's
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lilho - 01/24/08 00:23
saweet shiz bro!

01/23/2008 15:05 #43002

clif bars - no wheat
Category: food
Who woould have thiught, clif bars are wheat free.
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imk2 - 01/24/08 22:03
that's the stuff i give to my study participants.
joshua - 01/23/08 15:11
I love those things... I've tried them all. They are a decent bridge between meals.

01/23/2008 12:59 #42998

Tears of flour filled sadness
Category: food
I knew it. I am freakin' blood test certified allergic to wheat and corn. I am totally not surprised as I am such an allergic person and I am sure that Hay and grass are one of my main enemies. This morning my stomach was all gurgely, squishy which is not a good thing and I did eat wheat yesterday for the first time in weeks.

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I have a doctors appointment to discuss this on Friday Feb 1. I wonder if anything else is wrong with me - I took so many tests last week.

Finally, I have an appointment with a gastro on Thursday. I wasn't going to go but now I might go to discuss this with them. What if everything is my allergies. I am really only a step away form bubble boy. What the fuck happend to me that made me so allergic to everything. It seems liek my immune system is so over the top xenophobic.

Gluten causes damage to the intestinal lining by eroding the villi and microvilli essential for digestion and absorption processes. This damage then increases the likelihood of partially digested gluten proteins passing into the bloodstream. Certain proteins cause our immune systems to react. Undigested partial proteins found in gluten cereals have morphine-like properties once they enter the bloodstream, suggesting an origin for the phrase 'comfort foods' and its addictive nature. Once an immune response has been initiated, inflammatory reactions can cause a whole host of wheat allergy symptoms. A gluten/wheat allergy may not always be a severe frequent reaction but can result in many digestive symptoms � flatulence, bloating, constipation, diarrhea, pain etc. � and may aggravate a host of other symptoms.



--paul

chico - 01/24/08 13:29
Sorry Paul I goofed. The Ezekiel bread is flourless but actually contains just about everything that you are not supposed to eat. So scratch that idea and shame on me for not checking the facts first.
chico - 01/23/08 23:17
hey Paul sorry to hear the rotten news. Ami suggests (if you're not already hip to it) eating Ezekiel bread. It's available in the freezer/refrigerator case of the Lexington Co-op and the Amherst St. Wegman's (natural/vegetarian foods section).

We've been eating this Ezekiel stuff for 10 days or so and I have to say, if you like whole-grain bread it's pretty tasty, and apparently it's gluten-free and all that.
metalpeter - 01/23/08 18:03
I really can't imagine being allergic to something. I know a lot of people are but for me it is a hard idea to grasp. The part that drives my mind wild is that some are caused by your body thinking things are harmfull that aren't and then that causes problems. I wish you luck in getting what is wrong all figured out and dealing with it.
brit - 01/23/08 14:50
wow...I honestly honestly believed that in america health care was awesome if you had insurance and if you had something wrong they would diagnose you in a week and sort you out...it's just as bad as Britain and not even free!
paul - 01/23/08 14:13
I do, but this might be my trigger or make it worse? I realy need to talk to my doctor before I know more.
brit - 01/23/08 13:32
does this mean that you don;t have crohn's or the ulcery thing? Or are they still not sure..I am as confused as you now
joshua - 01/23/08 13:22
Dude -

I'm really sorry that you are going through this. I know how much you like eating various foods and this has to be a major lifestyle change for you. The good news, AFAIK, is that you can still eat all the seafood you want. Still though, I hope that you can find ways to enjoy eating with limiting how compromised you feel.