"My whining, complaining, bitchy..." written by Paul on estrip.org

Category: health

01/13/08 09:37 - 33ºF - ID#42874

My whining, complaining, bitchy...

Intestines... I know that you are probably so tired about hearing about this as I am tired of living it, but I figure it will be good to look back on the whole experience someday.

I thought it was all better. Well, not all better but seriously from the scope on wed to sat I was doing so good. I took my medicine with every meal and I ate exactly what i was supposed to. I was even abe to go out all afternoon on saturday with no real problems. Then starting last night at like 11PM it all started getting achey again. My intestine started getting all achy and spastic and painful. I didn't eat anything weird and I know what is in all my food as I cook everything now- at every meal.

I haven't had any dairy since the scope to see if that made a difference and I thought maybe it did. I hadn't eaten any wheat either - that is until yesterday afternoon when I had two slices of wheat bread. Maybe that was it.

I really need to get tested for food allergies just to make sure I don't eat anything I am allergic to with my already stressed system. It makes me so sad to think it will not get better. In fact, when I was in line at the coop buying some soy yogurt and ocean perch I almost started crying because I thought - now food is ruined for me and some sad 80s song was playing. The one social, kind of nice thing I liked to do besides compute was eat and it is all ruined. Living with Crohns is seriously going to kill me mentally if not physically.

I was also freaked out by a white guy dressed as an muslim with desert head garb thing and all. Call me ethnocentric but he was white as white bread, with a black dude and looked weird to me. It was just a strange combo and apparently my medicine makes me moody.

Just imagine this guy but a white looking white bread guy inside.

As soon as I found that pic above, I found this one, which explains it so much better

If this continues I am seriously going to need some sort of anti-depressant, pain medication myself.

Permalink: My_whining_complaining_bitchy_.html
Words: 399
Location: Buffalo, NY

Category: food

01/12/08 10:13 - 35ºF - ID#42862

Cleaning out the kitchen

Now that I cook every meal in the kitchen I figured I better clean it out a bunch. I threw out all the old disposable plastic tupperware which I am convinced is cancerous and replaced it glass in a similar fashion to throwing out all the teflon (e:paul,39134) a few months ago and replacing it with stainless steel.

These are the lids, the actual containers didn't fit in the pic.

Here are the new ones.

I even threw out all my candy supply.

Yes, even the candy canes.

I ate clams and pills for dinner. I am feeling so much better.

3 pills are asacol but the rest is all spirulina, fish oil, friednly bacteria dn a mashmellow root which really seems to help.

There is no snow anywhere - how crazy is that?

This dude at the Galleria needs help.

Damn, this tower is ugly. I know I have already talked about it ten times but the rust drips just take it to the next level.

We drove down Dodge street today as directed by my brother's GPS a few weeks ago and saw this building - what was it? It is on Dodge, in the east side right near the 33.

The pigeons really like McDonalds on elmwood near the Regal. I like to call it Mc Shooters.

Back in 1997 - on elmwood near great arrow, the only time I was hit by another car. It was my fault, the other driver was black - the firemen who worked there screamed at him and took me inside to rest. I tried to explain. Racism at its finest.

jim writes at 06:19:09 01/13/08 - Comment #30330: Here's some more photos of the German Roman Catholic Orphan Home: :::link:::

jim writes at 05:34:19 01/13/08 - Comment #30329: That's an orphanage on Dodge street: :::link:::

james writes at 04:51:37 01/13/08 - Comment #30327: As someone who has drank spirulina many, many times I will confirm what Jason wrote and say you are a smart cat for taking pills.

Dodge looks like a quirky street, I will have to drive down it.

paul writes at 04:42:37 01/13/08 - Comment #30324: I have no idea but I figure a disposable, plastic container made in china can't be good news, besides they all break down over time so I think it is a better solution to spend a but more on ones that last. I think I spent $50 to replace them all with glass and now they should last a lifetime.

libertad writes at 04:39:38 01/13/08 - Comment #30323: Those food containers you got look really nice. Do you think that those containers cause cancer even if you don't put them in the microwave?

empireoflight writes at 03:13:48 01/13/08 - Comment #30315: How can you throw out razzles?

fellyconnelly writes at 12:58:23 01/13/08 - Comment #30308: i'm SO glad you are feeling better... it makes me so happy to see lighthearted posts from you again..

and that apartment tower IS ugly... i shudder to think of it...

leetee writes at 10:47:48 01/13/08 - Comment #30304: Glad to read you are feeling a bit better. I have every confidence you will manage this and it will be empowering! :O)

Even though there have been times you have posted pictures of food i find icky looking (i am SO NOT a seafood lover... *shudder*), i am happy to see you have posted pictures of your food. Sadly, for me, the pills look the most appetizing...

jenks writes at 10:14:09 01/13/08 - Comment #30300: paul I'm so glad to see you're taking this all in stride, and better yet- starting to feel better.
You're a champ. You'll totally beat this.

jason writes at 04:35:14 01/13/08 - Comment #30297: The sense of humor, with the pills on the dish, is really fantastic. I saw on Travel Channel Spirulina being made, and holy shit, be glad you're taking it in pill form, unless you like drinking something that looks like sewer sludge. Glad to hear you're feeling a tick better.

paul writes at 10:40:26 01/12/08 - Comment #30293: I heard that too. Matthew said it was closing and that it was for sale. It would make a great club - if only I had that kind of money.

libertad writes at 10:28:10 01/12/08 - Comment #30292: I heard you liked being taken into the fire station.

Permalink: Cleaning_out_the_kitchen.html
Words: 296
Location: Buffalo, NY

Category: work

01/12/08 02:05 - 37ºF - ID#42854

I started working at age 12

I stopped by my mother's house today to drop off some artichockes as they are too high fiber for my low residue diet. She had some old papers for my and I seriously have worked my whole life.

My father was particularly good (pronounced - god damnit paul get a job) at making me have a strong work ethic. Same with (e:hodown)'s mom and her. And I guess both of us have stable long term jobs, so maybe it pays off. However, the point of this is that I have worked pretty much non-stop since 1989 - almost 20 years ago - when I started my first paper route. Yes, there were a couple months here and there when I was between jobs but all in all, I worked every year I could and that is insane.

Permalink: I_started_working_at_age_12.html
Words: 138
Location: Buffalo, NY

Category: web

01/11/08 10:46 - 36ºF - ID#42847

Searching Craigslist

I found this guys website flyer on craigslist

and I seriously cannot believe that anyone would do a website for $100. Not as in $100/hour but just $100. For how much work? Is that like slave wages - I man honestly you could make more as a cashier on hourly payments when it comes down to it. Or maybe I am just overestimating quality into it. I guess maybe it is just a CMS but it sounds like s/he customizes to their needs.

Permalink: Searching_Craigslist.html
Words: 90
Location: Buffalo, NY

Category: crohns

01/10/08 11:59 - 39ºF - ID#42830

Tastey food - I tried

i had a good day at work today. With everyone gone I got so much work done, lol.

I hated being at the hospital

This is the you have crohns face

For breakfast I ate these pill with an egg, a banana and some apple sauce

So I am trying to make my low residue, low fiber diet taste good

For lunch I had my favorite, Dr. Praeger's potato coated, gluten free fish sticks

For dinner I ate potatoes with squids and asparagus. Notice the lack of potato skin. For some reason asparagus is on the low residue diet list. It must be low fiber. Everything is boiled to death, don't worry.

Permalink: Tastey_food_I_tried.html
Words: 138
Location: Buffalo, NY

Category: work

01/10/08 08:02 - 38ºF - ID#42824

Web Job Offers

Anyone else looking for a better PHP/Actionscript job? I am not so much right now. I get so many offers via estrip its insane. these ones are kind of generic and if anyone is interested go ahead and contact them.

@ 01/09/08 18:21@125.63.70.117 Guest wrote:
Urgent Requirement for Senior Php5 Developer in NYC, NY
Base Salary:100,000 /yr plus Benefits
Contact me for full Job Description | eugene AT indosys.com (Ph: 408-361-8159)

@ 01/05/08 10:57@99.248.18.40 Guest wrote:

Hello,

I found your info from a simple Google search, I am currently looking for freelance help (per project) on a variety of projects from Flash games (single and multi-player) to applications and websites.

Mainly AS2 and AS3 and well as implementation of graphics and some motion design.

If you are interested please feel free to reply to this email or contact me with some samples of your work or to add me to your MSN messenger so we can chat online.

I am not opposed to employees with a lot of moonlight time and welcome a reference to another flash developer you can recommend if you are not interested.

References links and code samples will be required.

Thank you,

--
Mike Sorrenti
T: 905 893 0861
F: 905 893 4397
Mobile: 416 857 4821
MSN: sorrenti_michael AT hotmail.com @

Permalink: Web_Job_Offers.html
Words: 204
Location: Buffalo, NY

Category: crohns

01/09/08 09:57 - 48ºF - ID#42812

Prednisone

So I picked up the final Crohn's medication today - a steroid called presdnisone

. Theis brings me to an even 17 pills a day.

The side effects sound terrible. Not to mention it says right on the bottle to avoid contact with sick people as it suppresses your immune system. How the hell am I going to do that working at a hospital, in Buffalo during winter and living at a house where (e:matthew) nannies children. I seriously am going to need to be in a bubble. So basically, I can expect to get really sick on top of my really sickness. I want to just be put down. I feel like I should just go on vacation.

jbeatty writes at 07:43:33 01/10/08 - Comment #30179: I'm sorry about your ordeal Paul. I hope you start feeling better soon. The only side effect I had from prednisone was a little bit of weight gain, other than that it didn't really mess with my system too much.

jenks writes at 07:39:54 01/10/08 - Comment #30178: Don't be scared of the 'roids Paul. Every medicine has a huge scary list of side effects. But most of them are like 1 in a million. And you're not on it forever- just til things settle down.

And I bet you'll start singing the praises of prednisone soon enough, when you start feeling better. ;)

webnovice writes at 04:16:43 01/10/08 - Comment #30164: hang in there...just take one day at a time. Knowing the answer means that now you can manage it and new research every day means that someday this could improve even more.

ladycroft writes at 04:15:22 01/10/08 - Comment #30163: welcome to the intestinal disorders club :)

you'll be fine, it just takes time to get used to it.

mrdeadlier writes at 02:13:01 01/10/08 - Comment #30157: My Ankylosing Spondylitis (quite the mouthful) is an immunodeficiency in the same vein as Crohn's, I believe. Maybe I'm just lucky but out of the four in my household, I seem to get sick the least. So whatever.

At least I did get to stand in line (legitimately) with all the old folks a couple years ago when there was a flu shot shortage.

Like James said, eventually you learn to live with your malady and just accept it as part of life. The way I've always looked at mine is that it could have been worse, you know something that isn't chronic as much as it is terminal.

fellyconnelly writes at 09:59:29 01/10/08 - Comment #30146: i would totally make as many steroid jokes about myself as i could fit into a day if i were you. try to stay positive paul... you can beat all this and feel good again..

museumchick writes at 08:33:08 01/10/08 - Comment #30141: If you ever have any questions about Crohn's or anything, email me anytime. Are there any support groups in Buffalo? Maybe it would help to talk to others in person who are going through the same thing.

museumchick writes at 08:04:27 01/10/08 - Comment #30134: I know it sounds scary- but usually your body adjust pretty fast to prednisone. I've been on it off and on for seven years now, and I only experience those kinds of symptoms on the highest doses.

I'm really sorry you have to deal with this. I think you will start to feel much better once they find the right treatment. It's hard waiting in the mean time, though.

james writes at 11:14:33 01/09/08 - Comment #30131: As someone with a horrific chronic disease. At first it is really depressing and life just isn't worth as much as it used to be. But, then you get used to managing it and life moves on. So, hang in there, as they say.

lilho writes at 11:12:35 01/09/08 - Comment #30130: come visit meeeeeeeeeeeeeee!

matthew writes at 10:36:44 01/09/08 - Comment #30129: If my weak-ass immune system can handle the kids, i think you'll be okay. I'll be your disease buffer. Perhaps we can now convince terry that a 3 month sojourn to the south each winter would be good for invalids such as us.

Permalink: Prednisone.html
Words: 124
Location: Buffalo, NY

Category: crohns

01/09/08 08:05 - 48ºF - ID#42811

Low Fiber/low residue diet

ANyone know of a good nutritionist in town? I get, I know why I have to eat it as part of my low reside/low fiber Crohn's diet but it seems to hard to think about eating the crap on my copyright 1998 list of food I can consume. According to it.

Fats I can eat:
butter, margarine

Fats I can't eat:
all others

That freakin' cannot be right. Haven't there been so many studies showing that mono and polyunsaturated fats are good for you. And clearly no fat has fiber. When I looked it up online

, which I am good at and have the ability to do, it says all oils are fine. But for many people getting this stupid piece of paper they might think they can only eat butter as a fat. It is such a disservice to people to have inaccurate information. The whole sheet has tons of contradictories and is missing commas all over so some of it makes no sense.

Thank god I can eat crispy bacon

Here is the whole list

jenks writes at 09:51:04 01/09/08 - Comment #30127: Ok Paul.
1: Sorry you got 'bad' news. BUT- at least now you have an answer, and can start treatment. It's a manageable disease for a lot of people. It's NOT the end of the world. AND- it's not your fault.
2: I would like to think that the things not allowed on a low-residue diet are high-residue. I do not think alcohol is high-residue. I also think that with all this push for high fiber diets, eat lots of fruits and vegetables etc, that it's funny to see fruit, vegetables, whole grains- the things we are always told are healthy- be off limits.
3: You are already NOT following doctors orders! He said you are not allowed to read the crap on the web. he said clevelandclinic.com and mayoclinic.com only!!
4: You're welcome- it was nice to escape from work for a bit anyway. :)

paul writes at 08:53:11 01/09/08 - Comment #30125: As (e:jim) noted in the chat, How am I going to live wihtout my scrapple?

brit writes at 08:30:35 01/09/08 - Comment #30124: yeah, it's because it's so personal from case to case...like epilepsy, you only know what to do and what not to do after doing it a bit...like water and fruit lots of sleep = good, heroin, lack of sleep and wendy's = seizure...not that I ever did heroin.

paul writes at 08:21:55 01/09/08 - Comment #30123: God, there is so much conflicting information :::link:::

brit writes at 08:19:50 01/09/08 - Comment #30122: oh and attacks are sometimes highly correlated with stress so you should be calm...always...

brit writes at 08:13:26 01/09/08 - Comment #30121: This is like a comprehensive list for the mean time you should stick to it but you should try things in a few months (one at a time not a wendys) and see what you can tolerate...Crohn's patients can reintroduce over time depending on the severity and frequency of attacks and stuff

Permalink: Low_Fiber_low_residue_diet.html
Words: 186
Location: Buffalo, NY

Category: health

01/09/08 01:44 - 48ºF - ID#42807

Crohn's Disease, Great ;(

Well the doctor is pretty sure I have a long term chronic disease called Crohn's disease now that will probably make me go insane. That is not a side effect but knowing my ability to cope with stuff I think insanity might be in store.

Apparently, it is really bad that I didn't take the medicine before. I promise I will now. 9 Pills a day of asacol and I don't know how many yet of steriods. I never took steroid before - do they make you feel weird.

Here are the insides of my colon looking all sick and yucky.

I guess it helps to have a doctor who is a cousin. He told me it is genetic and when I said I didn't think anyone in my family had it, he said I was wrong.

It was so nice of (e:jenks) to shows up and check on me as I woke up. It meant a lot.

fellyconnelly writes at 09:55:35 01/10/08 - Comment #30145: wow paul i'm so sorry for this... but you have to keep positive and be glad that you have a name for what ails you.... which means u can begin to feel better with the proper medicine...

libertad writes at 07:58:57 01/09/08 - Comment #30119: I'm really sorry Paul that you are going through this. Have hope that you can keep it in remission most of the time. I'm sure the outlook you have can affect most anything. Maybe it will begin to subside when the stress of not knowing what is going on subsides. Keep us updated on how you are doing.

brit writes at 07:38:18 01/09/08 - Comment #30117: I'm sorry too paul....My mum's boyfriend has that and he had it in the days when they couldn;t do anything so he had a really bad time but you won;t because they treat it much better these days, you'll work out what offends your guts over time and you will be able to eat better after some trial and error....

paul writes at 07:37:04 01/09/08 - Comment #30116: Ya, this morning when feeling really sick I was looking in the mirror and thinking why does the outside look so normal when the inside is falling apart.

leetee writes at 07:01:39 01/09/08 - Comment #30115: Oh, Paul, i am so sorry to hear it is Crohn's. That, well, just sucks.

I don't know what else to say... except that i would love to say something that will make it better.

Uhm... how about thanks for putting the bad bits of my day into perspective for me? Nah... that won't make YOU feel better!

Take your meds? Yeah, you know that.

Uhm... i like the other pics of your butt better? From the outside...

I wish you well in managing this disease, Paul.

Thanks, (e:Jenks) for being there when we all couldn't!!

mike writes at 06:57:59 01/09/08 - Comment #30114: THAT is horrible! That sucks majorly! So like you can't eat crazy things or drink a lot but are intravenous drugs still ok?

metalpeter writes at 05:45:56 01/09/08 - Comment #30112: I'm not happy you are sick and you shouldn't be. But you should be happy that you know what it is. This way you can at least treat it and hopefully what ever you do for it will make things Better. I'm sure there are things that are a lot worse so I guess that is a good thing. Of course having chrons is bad but at least you know what it is and you can move on from there.

james writes at 05:42:21 01/09/08 - Comment #30111: Things could have come out much worse.... which is the crappiest silver lining ever.

Sorry to hear Paul.

vincent writes at 04:11:05 01/09/08 - Comment #30109: First off I'm sorry Paul.

My Ex-Girlfriend has it, so I have an idea of what you are going through.

mrdeadlier writes at 03:37:14 01/09/08 - Comment #30108: I've got 2 friends that have Crohn's and from what I understand it can be rough. One of them is on the same medication I take for my spondylitis, Enbrel. I don't know what it does for Crohn's but it makes my symptoms literally non-existant.

Anyway, this sucks for you and you have my sincerest condolensces.

Just remember... Always always always take your meds!

mrmike writes at 02:19:13 01/09/08 - Comment #30107: You've done it. I'm now nostalgic for the photos for your lunches around town. Kudos to Jenks for looking out. At least knowing what is going might slow down the insanity somewhat. Hope the new meds afford some actual relief.

jim writes at 01:54:47 01/09/08 - Comment #30106: Sorry Paul!

Hope the medicine helps you out a bit, at least.

janelle writes at 01:50:21 01/09/08 - Comment #30105: Wow, I'm sorry Paul.

Permalink: Crohn_s_Disease_Great_.html
Words: 160
Location: Buffalo, NY

Category: weather

01/09/08 06:27 - 48ºF - ID#42802

I'll huff and I'll puff and...

blow your house down wih my 50mph wind.

I woke up this morning at 6am for the other half of my yummy lemon-ginger phoso-soda and heard this crazy smashing noise. Turned out the be a doll house from our yard blowing into the air and into the church.

Then all the garbage can blew down. Then this super loud thud which was the attic escape pod hatch. A 100lb metal and wood creation, blowing off the roof and 30 forward and like 100 feet down into the front yard. It was so scary to recover it because I was afraid other things would hit me. I guess (e:terry) never tied it down after going out on the roof at the party. There is no way I can get it back up there without someones help.